Rare Partners
Connect government policymakers with diverse experts from civil society, academia, industry & former government officials from their own country & other countries
Rare Disease Alliance of Legislators (RADIAL)
A network of legislators from legislative bodies around the world (e.g., parliaments, congresses) who are currently leading or have led efforts to draft and pass laws and policies related to rare diseases
Senior Officials Responsible for Rare Diseases (SORRD)
A network of the most senior government officials from health ministries who are responsible for policies and/or programs related to rare diseases and orphan drugs
Regulators for Orphan Drug Availability (RODA)
A network of regulators from medical product regulatory authorities around the world (e.g., FDA) who are currently leading or have led efforts to accelerate and harmonize review & approval procedures for orphan drugs
What Policymakers & Partners Say
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