RADIAL
Rare Disease Alliance
of Legislators
RADIAL is the global rare disease caucus—a network of legislators from legislative bodies around the world, leading efforts to draft & pass patient-centered policies & laws for improving the lives of people living with a rare disease, their families, and caregivers.
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An initiative of the Global Rare Disease Policy Network & APEC Action Plan on Rare Diseases
WHAT WE DO
Grow Our Networks
Build working relationships with like-minded legislators from around the world who are committed to improving health & well-being; and strengthen regional & international cooperation.
Share Best Practices
Contribute to the development of tools & guidance to support rare disease policymaking; and exchange ideas, real-world lessons, challenges, evidence, and opportunities to improve laws, regulations, and policies for rare diseases.
Exchange Feedback
Receive fresh perspectives on draft legislation from fellow legislators in different countries in a safe & secure manner; and offer your own perspectives, expertise, and experiences to fellow legislators who may face similar barriers & issues.
Support RD Policy & Patients
Demonstrate the value of legislation & the role of legislators in rare disease policymaking to government partners & other stakeholders; and reinforce your commitment to improving the lives of patients, families, and caregivers.
WHO WE ARE
We are:
Current legislators, parliamentarians, senators, deputies, representatives, or other members of a legislative body
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Working at local, state, national, or supra-national levels
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Leading efforts to draft & pass patient-centered policies & laws related to rare diseases
